A year in review.
“Its been said that my son’s sense of time is just like mine. I’m the “early is on time, on time is late” kind of gal and when Oscar made his debut 5 weeks ahead of time, my friends made it a point to say how he got it from me...”
"I don’t think it’s nice to talk badly about people behind their backs. Which is why I’ve asked my husband for his blessing to publish this article. Here’s the thing, I’ve gotten so many comments and messages about how strong we are as a family, and I can only imagine it looks that way in the one or two pictures we have on social media together as a couple..."
"...Day by day, it’s become more and more clear that our priorities are in constant motion depending on our circumstances..."
"...The questions I have to ask myself regarding having a second child are daunting. The questions I have to ask our doctors about our future in general are daunting. There are lots of worries, hopes, and concerns when raising children, but throw multiple chronic illnesses in the mix and the future looks a lot scarier..."
*content warning: pregnancy loss, miscarriage, adult language
..."Terrified doesn’t even begin to describe what I was feeling. But here I was, a parent for a few short days in an exorbitant amount of pain and responsible for a baby I’d met for about 30 seconds. At this point, I had never held my son or heard him cry. I had no idea what he felt like, what he sounded like, or even what he looked like. Yet, I was supposed to give permission to a complete stranger to administer drugs that would put Oscar to sleep for surgery — this mystery Oscar who I yearned to see, to touch, to hold— this mystery Oscar with a mystery diagnosis, my son..."
"...Soon after [his birth], I would be handing him off to surgeons, specialists, nurses, and therapists -- all who presented me with more information than I could have ever dreamed of in the realm of development. It became very clear early on, that I had no clue what I was doing. These people had multiple degrees, continuing education, and practical knowledge in how to raise children like my son, but I was a blank slate..."
..."This was the first time we were around a child who was developmentally appropriate for his age. I suddenly felt like a ton of bricks had been dropped on my head. This little boy wanted to play with my son, but all he could do was lay there. He wasn’t sitting yet, and he hated being on his belly. His delays were suddenly glaringly obvious — a new feeling for me. So this is where we are supposed to be? These seemingly simple milestones seemed so, so far..."
"...I stared at my closet full of hangers and bins of my pre-baby clothes and accessories that I kept in the event that I would ever fit into them again. And while many clothes were quite close to zipping, I found my inner Joan Rivers saying, "just because it zips doesn't mean it fits..."
"...It is simply my job to do what I must to keep my chronically ill child as healthy and happy as possible, and that does not require understanding why..."
"...She's turned her passion into a career, and risked everything to found "The Quadd", a Miami based company offering design and decor services. While she loves the idea of luxury -- I mean, she was planning on moving into Versailles -- she wants to offer Pinterest worthy dream spaces at all price points..."
"...at the end of the day, we are just a mom and a kid who need a little extra help sometimes...."
"...I help my newfound friend take down her booth over discussions of therapies, independent mobility, frustrations, hopes, fears, birth stories, and hospital visits -- peppered with some dark humor, of course. What a delight! I can't tell you how good it felt to talk about these things as normally as most other people talk about topics like teething, or chasing after their crawling baby, or how their baby is starting to talk already..."
"...the fact that it was so last minute made it like ripping of a band-aid. One, t - oh shit band aids off, baby's home and we're halfway to Alabama..."
"...Just like the geese who fly in a "V" to fly faster, going through life together with my flock makes it a heck of a lot easier. When we work together, and lift each other up, we can conquer anything..."