A risk and benefits analysis.
A risk and benefits analysis.
Adventures in learning how to walk.
“…It made me think of all the humor that can be found in the realm of medically driven lives. And it’s not just me, I’ve met many people in life who deal with medical crisis with humor — or at least can still find the strength to laugh…”
“…Raising a child is exhausting and stressful. When that child is disabled, medically complex, or has special needs, everything is exponentially more difficult. It’s taken me a while to gin up the courage to write this guest post, so I hope it helps friends, family, and others understand what parents of special needs kids go through…”
“Remember that class you had in college, where there were no right or wrong answers, only "best" answers? Scenario after infuriating scenario was presented, and you had to make your case for how you would get the best possible outcome, only to never actually get validation that your answer was "correct." Ethics. My entire life is now an ethics course…”
“…Two years into being a stay at home mom, it's dawned on me that I don't think I am stay at home mom material. I love my son more than anything in the world, and his appointments used to keep us extremely busy. But now, things are slowing down (knock on wood), he spends two full days at school every week, and - don't get me wrong, I love all the snuggles, but he needs more and so do I…”
A year in review.
“Its been said that my son’s sense of time is just like mine. I’m the “early is on time, on time is late” kind of gal and when Oscar made his debut 5 weeks ahead of time, my friends made it a point to say how he got it from me...”
"I don’t think it’s nice to talk badly about people behind their backs. Which is why I’ve asked my husband for his blessing to publish this article. Here’s the thing, I’ve gotten so many comments and messages about how strong we are as a family, and I can only imagine it looks that way in the one or two pictures we have on social media together as a couple..."
"...Day by day, it’s become more and more clear that our priorities are in constant motion depending on our circumstances..."
"...The questions I have to ask myself regarding having a second child are daunting. The questions I have to ask our doctors about our future in general are daunting. There are lots of worries, hopes, and concerns when raising children, but throw multiple chronic illnesses in the mix and the future looks a lot scarier..."
*content warning: pregnancy loss, miscarriage, adult language
..."Terrified doesn’t even begin to describe what I was feeling. But here I was, a parent for a few short days in an exorbitant amount of pain and responsible for a baby I’d met for about 30 seconds. At this point, I had never held my son or heard him cry. I had no idea what he felt like, what he sounded like, or even what he looked like. Yet, I was supposed to give permission to a complete stranger to administer drugs that would put Oscar to sleep for surgery — this mystery Oscar who I yearned to see, to touch, to hold— this mystery Oscar with a mystery diagnosis, my son..."
"...Soon after [his birth], I would be handing him off to surgeons, specialists, nurses, and therapists -- all who presented me with more information than I could have ever dreamed of in the realm of development. It became very clear early on, that I had no clue what I was doing. These people had multiple degrees, continuing education, and practical knowledge in how to raise children like my son, but I was a blank slate..."
..."This was the first time we were around a child who was developmentally appropriate for his age. I suddenly felt like a ton of bricks had been dropped on my head. This little boy wanted to play with my son, but all he could do was lay there. He wasn’t sitting yet, and he hated being on his belly. His delays were suddenly glaringly obvious — a new feeling for me. So this is where we are supposed to be? These seemingly simple milestones seemed so, so far..."
"...I stared at my closet full of hangers and bins of my pre-baby clothes and accessories that I kept in the event that I would ever fit into them again. And while many clothes were quite close to zipping, I found my inner Joan Rivers saying, "just because it zips doesn't mean it fits..."